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The Results

01 Thursday Feb 2024

Posted by Sherry Gomes in Uncategorized

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author, Haven, juvenile rheumatoid arthritis JRA, kidney cancer; blindness, writing

February 1, 2024

When I last posted, I was going to my oncologist to get the word on the results of my latest CT scan. The scan showed that the nodule on the left lung, the one that had grown before had grown more, but still not enough to be able to do a biopsy. Rosie, my sister, who is my medical proxy and always with me at these appointments, and I protested. Isn’t there something, anything we can do. Dr. Z explained that they can’t do anything until the nodule is big enough to be able to do a biopsy and get the pathology on it. A PET scan would not be helpful, because they still can’t tell if the nodule is cancer, not until they can get a biopsy. so, we wait another three months and do another scan. Ugh. I see Dr. Z again on April 22. He even reminded me that JRA can form nodules in the lungs. I don’t think those nodules would grow like this one, but they have to be sure. After all, any treatment for cancer is hard on the body, so it’s not good medicine to treat before you know.

I am so frustrated with this process. Having lived with the JRA all my life, i’m used to taking action for my disease. Meds not working well anymore, let’s try something else. Joints worn out or mobility lost to the point of nearly unusable, let’s do a joint replacement. Action, not this waiting and waiting. But this is the best course for now.

I decided that i’m not going to waste the next three months. I was so devasted after October, and the huge growth of one of those nodules, that I just drifted until the next appointment. i will not do that this time. fascination, the next book in my Haven Valley series, is almost halfway done. i’m determined to finish it before seeing Dr. Z in three months. It won’t be publishable yet, but at least to have the first draft done. i’m determined to work on other aspects of my life, and spend every day being glad I’m still here and still going on, kicking and screaming some day–not really but in my mind–content on other days, but still going along. And we’ll see what we see, on April 22.

1375 words

02 Monday Nov 2015

Posted by Sherry Gomes in Uncategorized

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NaNowriMo, writing

Okay, so it’s not a great start. I did 1375 words yesterday. and I forgot to update my stats on http://www.nanowrimo.org. boo. I just did it. To be fair to myself, I did a lot of editing yesterday of previously written material for this story. man, once upon a time, I really thought I was a great writer, but when I read what I’d done on this six years ago, I cringe. The story was great, but in the technical sense, I’ve improved a hell of a lot since then. Thank the Lord for fan fiction and learning my craft in that environment. And for writing Haven which is still my labor of love. So, it’s all good. If I finish the editing today, I’ll count those words in my word count because it’s like rewriting everything, from a complete change in character names, to all the dialog and narrative. Yikes. Damn this is fun!

NaNoWriMo 2015!

01 Sunday Nov 2015

Posted by Sherry Gomes in Uncategorized

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1970's, 1975, coming of age, guide dogs, NaNowriMo, writing, young adult

Sunday, 1 November 2015

Yes, I decided to do NaNoWriMo this year. I tried this two years ago, and though I did write a lot, I was so burned out and trying this only made it worse. But I’m in a fairly good place this year and excited to get started today.
For those who don’t know, NaNoWriMo is national novel writing month. The idea is to write 50,000 words in thirty days. It feels overwhelming when you think of it that way, fifty thousand, yeah fifty thousand words in one month. But I went to the trusty windows calculator and determined that breaks down to approximately 1667 words a day. I can do that! In fact, knowing how I usually write for hours without stopping, on weekends I can do much more and get ahead, for those days when it’s hard to write 100 words, let alone over ten times that much in one day.
My story this year will be loosely based on the journal I kept during the first time I went to GDB to get my first guide dog in August 1975. I’ve hesitated about this for many years, even though I think I have a great story to tell. I don’t want to write for a limited market. Books about guide dogs are pretty common and generally appeal to only a limited few. But my first time through training ended up being about so much more than getting a guide dog. I was seventeen, just out of high school. I was shy, so terribly shy that I was nearly helpless around strangers and afraid of the sound of my own voice. Other than camp or an overnight at a friend’s, I’d never been away from home for such a long period of time, twenty-eight days. I would be in a class with fifteen other people, of all ages, walks of life, experience. My roommate was eight years older than me, and to me, she was wise in ways that awed me. She smoked pot, was sexually experienced and was unlike anyone I had ever known. I took my first steps in learning how to break out of my debilitating shyness. I gained confidence in myself in ways I had not expected. I developed a huge crush and found myself experiencing the first fumblings into sexuality. In short, I began to come of age, to move from that little girl into the woman I so desperately wanted to be. Of course, it was only the beginning of that journey, but that first time through guide dog training was when it began.
And this, I think, is the hook for the story, the thing that can make the story reach out to far more people than the limited disability or service dog market. Hasn’t every adult had those moments, those first times, those exciting and terrifying times, when we step into the first phase of adulthood? Wasn’t it glorious to meet people outside our bubble, to begin to discover sex, to feel that confusion about it? Didn’t we all have to come of age?
I think, and I hope, this story can touch hearts of people who’ve been through it, who are going through it and help people see that in all the way that matter, we are so very much alike. People with disabilities are not really that different at all. I know that at age seventeen, when I walked into that dorm for the first time, ready to get the dog I’d been dreaming of and waiting for ten long years, I never imagined I’d experience all the other things that came my way. It was an adventure, a romp, a thrill every minute. Well, for the most part.
I’ll be researching music of the era, movies, TV, slang and fashion. I remember the music well. I had a piece of luggage full of cassettes, many of which had been recorded by me putting my tape recorder up to the radio. I had a Perkins brailer and a binder of paper to keep my journal. I was not much into TV so can’t remember what we watched, but I well remember rushing to the theater to see Jaws several times that summer. I don’t remember what clothes I wore, but I was always nuts about clothes, so I’m sure I was wearing whatever teenage girls were wearing. The research will be fun, though I usually don’t enjoy research too much. It will be like stepping into a time machine. I wonder what I’ll find when I get there.
If anyone reading this is doing NaNo this year, feel free to buddy me on their site. My name there is sherriola. It’s going to be a fabulous month! Check back here for progress reports. It’s going to be a blast, or should I say, in keeping with the era, it’s gonna be Far Out!

Woo hoo, and according to the word count, I’ve already written 818 words, just writing this. I’m halfway to my goal for today! Can you dig it?

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