GETTING BETTER ALL THE TIME

June 14, 2024

Humming that song by the Beatles as I write. Amazing how a couple days can change my mood. It seems like venting as I did the other day helped me a whole bunch of help. I felt more positive the next day, and things are at least a little better for now.

I heard from the special pharmacy yesterday. They asked me a bunch of typical questions. I also asked if they participate in script talk, or if they could at least provide Braille labels. This med is too important to risk taking the wrong thing at the wrong time. The pharmacist said it could be done. They shipped the meds yesterday, overnight.

But early this afternoon, when I clicked on the tracking link in the email the pharmacy sent, I got the UPS site and a message saying no results. I was a wee bit freaked out, because my appointment with the “education nurse” is Monday morning, and I’m supposed to bring all three meds. But, presto, lo and behold, we checked for packages outside my door, and there they were! And in the bag with the box of meds was a very lovely Braille label! I haven’t put it on the med bottle yet; I’ll wait until the nurse sees it on Monday. But I feel jazzed just to have a damn Braille label for my very important medicine! Disappointed that the very large info packet isn’t in Braille. There’s still so much I don’t know, like what does this actually do. But I suppose at least a Braille label is something. Will we always live in a world, where something is better than nothing, but still can’t get accessibility for everything?

In other news, I ordered supposed “sun hats” from amazon. The weather is already so hot here, and if the cancer meds should cause me any fatigue, nausea, or other happy little problems, I don’t want the heat to add to it. I’m sensitive to heat. The info on the hats said they were made of straw. That’s what I wanted, a straw hat, a pretty straw hat, in a pretty color. I got the hats today, but if they’re made of straw, I shall, as the saying goes, eat them! Waaaaah. I want a straw hat! A pretty straw hat!! Lol.

Next update? Probably Monday after seeing the nurse. Will I be taking my first pill that day? I don’t know. They did say I’d have to have labs done before taking it, so not sure when this new adventure will begin.

I can’t guarantee future posts won’t be roller coaster style. I’m writing this journey, and I’ll be open with my thoughts and feelings, up or down.