• A letter To Dad
  • About

sherrygomeswrites

~ a place to share about my thoughts, my words, my writing and talk about books

sherrygomeswrites

Monthly Archives: May 2024

THE RESULTS, NOW WHAT

30 Thursday May 2024

Posted by Sherry Gomes in Uncategorized

≈ 1 Comment

Tags

cancer treatments, emotions about cancer, kidney cancer

THE RESULTS, NOW WHAT

May 30, 2024

Well, I got the results of the biopsy, and as I said in the title, now what? It’s definitely kidney cancer that has spread to my lungs. It’s no longer a nodule; now it’s a tumor. The largest tumor, the one from which they got the tissue for the biopsy, has already grown four more millimeters. It is now 1.6 centimeters, a little over half an inch in US measurements. There were a lot of things in the report I did not understand, lots of terminology I couldn’t find when I tried researching it. My sister thinks it’s about markers that determine the tumor is kidney cancer, not lung cancer. That’s important in regard to treatment options, but for me it means little.

I thought I was absolutely prepared for the results. I thought I expected it to be kidney cancer. Somewhere inside, however, I must have had a tiny bit of hope that I was wrong. I felt the world just drop away, like going down a super steep hill on a roller coaster. I did feel shock and terror, and I was surprised to feel those things.

My friend Doug and I spent some time on the web site of the American Cancer society, looking or treatments for kidney cancer. Chemo and radiation don’t work on kidney cancer. Due to my JRA, immunotherapy isn’t necessarily an option, as when it sends the immune system in to warp drive, it can also send the arthritis there as well. I looked at what they call targeted oral meds, and I was again shocked by the potential side effects. Everything you can imagine: nausea, diarrhea, dizziness, weakness, weight loss, changing hair color, mouth sores, hand and foot disease, high blood pressure, swelling in legs and potentially other areas of the body. Truly, I felt sick to my stomach and so scared. It might not be chemo in the technical sense, but the side effects looked exactly like what my dad went through with his lymphoma and chemo 27 years ago, right down to the hair color change and the mouth sores. I’ve always felt the chemo killed my dear father every bit as much as the cancer. I’m afraid of these meds, afraid of being alone going through this, afraid that with weakness and dizziness, I could slip on my hard wood floors, or getting in and out of my shower, or even trying to get out of bed to go throw up when necessary. I’m afraid of collapsing and not being found by anyone for a long time. I’m afraid of well, whatever comes in to my mind! I’m not generally fearful or nervous. I do stress out over money and things like that, but not really afraid. But now, I am afraid.

People have been supportive for the most part. Some people say be calm, be strong, be patient until you meet with your oncologist. Ha, laughing humorlessly. It’s so eaqsy to say that, when it’s not their cancer. If I have to go through fear and uncertainty, anxiety and stress to process this, then that’s my right and it’s okay. I’m giving myself permission to feel what I feel. I give myself permission to be true to my own self and allow myself to react, even if it’s just inside or here in this journal. Sometimes, I find I want to hold those feelings close, so as not to burden my loved ones. But damn! I have cancer, cancer that must be treated with meds with terrible side effects. It’s not going to do me any good to pretend I don’t feel anything. I’m not sleeping well or eating well. Even though today I feel calm, inside there’s this ball of terror waiting to get out!

RESTLESS

14 Tuesday May 2024

Posted by Sherry Gomes in Uncategorized

≈ Leave a comment

RESTLESS

Restless. I’m so damn restless. I want the results of my biopsy, and I want them now! It is so hard to wait for information. I wonder if I always wanted to know things when I was a kid, because I know as an adult I certainly do, especially if it pertains to me. When I read books I prefer the third person omniscient point of view, meaning that I like knowing what all the characters are doing and thinking. And now, it is my body, my cancer, my body, and I want to know! I know I won’t see my doctor until June 10, but I can read the results, do research on anything I don’t know, prepare myself if it looks bad. I just want to know. So, yeah, I’m restless. And I’m anxious.

In a way, this is a weird mood for me. Meaning this restlessness makes me want to *do something, and *do something crazy, outrageous, expensive, unhealthy or weird. I want to go buy something extravagant, something I want but my commitment to living within my means might not allow. I want to go shop for pretty sandals for the summer, or for clothes I really don’t need. I want to go to the beach. I want to walk on a beach, even though walking on the beach has become difficult for me. I want to go to the Santa Cruz boardwalk, or pier 39, or Muir Woods or somewhere I don’t go anymore but used to love, a nice long walk where I don’t feel stressed out. I want to go eat out, at a Greek restaurant, a French restaurant, a burger joint, an Italian restaurant, or a place with really good steak, or just a place for decadent desserts! I want to go to a movie theater, eat buttery popcorn, and either laugh until I can hardly breathe, or cry until I’m practically ill from it, or both! Or a live theater show that will touch every part of my soul. I want to drink wine or margaritas and talk my heart out. I want to read something, just something, that occupies me so deeply, so fully, that even cancer can’t distract me from the power of the book. I want to breathe, play, and just run, run away from the fear and the waiting, and just forget myself for a while. To be not calm, to be not under control, to be a little bit wild and crazy and do it with all my might!

Yeah, I’m just restless and so very tired of it all.

BIOPSY DAY

10 Friday May 2024

Posted by Sherry Gomes in Uncategorized

≈ 1 Comment

Biopsy Day

May 10, 2024

I had the biopsy yesterday. What a day! So much hurry up and wait at the hospital. There was a lot of info nobody told me before the day, that might have been good to know in advance. But let’s start at the beginning.

Rosie picked me up at 6AM, and we were off. It took about 45 minutes to get there. When we arrived, we discovered that the directions on the site and given to me over the phone, were not exactly accurate. We went in the wrong door, security guard pointed us to regular radiology, who then pointed us to ADMC, Advanced diagnostic Medical Center. We ended up having made a big old loop, and back almost at the door we should have used to enter. It would be good for departing the hospital.

A man named Sergio started events with me. Not sure of his title, nurse’s assistant, nurse, don’t know. They’d told me to wear comfortable clothes, and when I arrived, Sergio told me to undress and put on the not so pretty gown waiting on the bed for me. He left us alone for that, and I got changed and scooted onto the bed. Sergio came back, took my blood pressure, checked my oxygen levels and my temperature. Then he was gone, and we didn’t see him again.

Next came a nurse, maybe maybe Seanna. She got me all wired up. She took my blood, inserted an idea, took my pressure again. She went over all my details again. One question she asked was, “if you need a blood transfusion, do you agree to us giving you blood product?” Okay, this made me want to laugh. I thought, what is blood product. Is it like cheese product? They call velveeta cheese product after all. Anyway I got a chuckle out of blood product.

At that point, it probably wasn’t even 8AM yet, and hurry up and wait time began. Soon, the radiologist who would be performing the procedure came to discuss. (why is it that they “perform” procedures instead of “do” procedures? Lol. My mind does go to crazy places sometimes. And here came the first info nobody told me before. Radiologist said that the nodule they needed to take a piece of was in the lower part of my left lung. “It might be hard to get a biopsy from it”. said he. “We might have to put it off a couple months until the thing grows a little more.” Then he told me that there was a possibility that my lung could collapse during the procedure, and that if I felt pain, I was to raise my finger and absolutely not speak. Speaking could cause me to breathe which could collapse the lung too. if my lung collapsed this would mean I would have to have a chest tube inserted to put some air in my lung to uncollapse it. After this cheerful declaration, he whizzed out, and I never, consciously at least, saw him again!

Well, I was heading in to freak out mode over all that, and Rosie was giving me encouragement, when Seanna spoke up. She squeezed my hand and reminded me that they do these biopsies all the time, and that there is rarely a problem. She did help me calm down. Thank you Nurse Seanna.

Following more hurry up and wait time, A man came in. His name was pronounced Zaya, but he told me to call him Z. He said he would be one of the nurses assisting in the procedure. His cheerful words of the day, let me know that though they would give me pain meds and numb me, I would actually be awake during the procedure. Something about not letting me sleep, because deep breathing could cause that happy lung collapse. But he was friendly and comforting, and though freak out mode appeared again after he left, I calmed down again.

A quick side bar here. The weird thing during all the freaking out modes, was that the heart monitor dined every time my heart rate wen below fifty, and even when I was anxious or scared, it would still fall below fifty. My blood pressure started out extremely high for me, but in the midst of freak out mode number one, it dropped back down to normal. Weird.

It was now twenty after eight, and we were back in hurry up and wait. But right at 9AM, Z came in with another nurse for the event, and after Rosie and I exchanged see ya laters, they wheeled me off, with all my attached equipment. The procedure was about to start!

They wheels my bed right next to the CT scan table, and they had me move as far to the left as possible and rolled me over to my stomach and on that table. They stuck a pillow under my face and told me to turn my head to the side. “I can’t turn it far,” I objected. “I don’t have much motion there because of my arthritis.” They kind of blew that off, or at least didn’t respond. I tucked the pillow down as far as I could from my nose. Z placed a oxygen thing into my nose, and I remember feeling much relieved as I felt the oxygen go in. Then z said he was going to put something in my IV, and I went away. Well, I guess I was there, but I didn’t know another thing until they were putting something on the wound and being rolled back to my original spot back on my original bed.

I asked them to call Rosie, and she was right back with me. We talked. I tried to go back to sleep, but the area was just too noisy. Every time that heartbeat went down to less than fifty, ding, ding, ding, went my monitor. There were monitors from all the curtained alcoves surrounding mine. There were phones ringing, nurses and technicians and patients talking, and loudly.

Hurry up and wait mode took two hours this time. They had to do a chest x-ray to make sure all was well with my uncollapsed lung, and they waited two hours to do this. Not explaining why it needed to wait for two hours, but I’m sure there was a reasonable reason for it. Two techs came in and they had me sit up and put a very hard x-ray film plate behind my back. Click, they took the picture, and then whisked away to develop it. Can you say hurry up and wait again?

The only way I knew the x-ray had been read by the radiologist was that we heard him say, “Gomes is good to go” and then he took off, never speaking to me at all. I had questions about the procedure. How much tissue did they get? Would I probably or possibly have pain around the area? You know, the sort of things you’d ask a doctor after they “perform” a procedure. But he didn’t bother to even say hello and goodbye. Nurse Seanna came in, read me all my instructions, had me sign things. Rosie helped me get dressed, Nurse put me in a wheel chair, and I was out of there!

When we arrived home, I went to bed almost immediately and slept four hours. Doug fed Shani for me. I got up for a couple hours and had something to drink and ate part of a bowl of yummy home made broccoli cheese soup Doug made for me. I went back to bed at around 8PM. I was feeling considerable pain by that point, but I fell asleep and didn’t really wake again until almost 6AM today.

I’m going to go lie down again for a while after posting this. I still have some pain and still feel sleepy. But it’s over, this part anyway. I don’t see the oncologist again until June 10, because he’ll be out of the office for a couple weeks. We don’t know when I’ll get the results of the biopsy. So, guess what mode I’m in now? Yeah, you got it, HURRY UP AND WAIT!!!

Thoughts on my Cancer

02 Thursday May 2024

Posted by Sherry Gomes in Uncategorized

≈ 2 Comments

Tags

cancer, health, kidney, kidney cancer, news

Thoughts on My Cancer

May 2, 2024

I’m sitting here today, drinking a latte and contemplating my cancer. As it has spread from kidney to lung, it is now stage four cancer and considered extremely serious. I have pain under my ribs, from the left lun area, I guess. It’s not extreme yet, but I grew up in pain and have lived with chronic pain all my life. I tend to ignore pain and almost not notice it. But I notice this. It’s not constant, but it’s more there than not, whereas two months ago, it was not there more than it was there.

It’s scary to think of having stage four cancer. When it was kidney cancer three years ago, hey presto, do a quick little surgery to remove a sick kidney and go on our merry way. It was stage three then, and now it’s spread and it’s stage four. Every time I hear of stage four cancer it’s a serious thing. I’ve looked up info on my type of cancer. No, not on worthless, meant to terrify internet sites, but excellent info and books on kidney cancer. And I’m, “freaking petrified” to quote my favorite movie, character Elliot Garfield as played by Richard Dreyfuss in THE GOODBYE GIRL. Knowing how few treatment options there are for me, few as in one treatment, I’m yes, freaking petrified. I can’t help it. I am staying as positive as I can, and I’m trying to keep busy—yes, actually writing again—but I am a bloody human being with bloody human emotions and I’m just plain damn scared.

I watched my dad die slowly, painfully, extremely agonizingly painfully, and died partly in my heart when he left us forever. No, it’s a different type of cancer, but when you realize you have stage four, you think of all the people you’ve know who haven’t survived it. Dad. Jim from the choir I was in at a church in San diego, and young twenty something guy who died of liver cancer in a couple months. And on and on it goes, the noise constanly running around in my head, like a hampster on a wheel.

I HATE THIS!!!! Why me? Why God, why me? Wasn’t it enough to be blessed from birth with JRA? Did this have to come along as well? I scream that in my mind and heart, even while I know this has nothing to do with God. As I said, I am a bloody human being, and we have bodies that don’t stay healthy forever and ever amen. I allow myself to have these periods of fear and anger, because it’s not healthy to conpress and hide my true feelings, even from myself, as I usually do. It’s okay to feel these things, and I am giving myself permission to feel them and express them. It’s why I’m writing this journey in a blog.

Anyway, that’s where my head is today. A week from today is the biopsy, and we’ll take it from there. One day at a time. Here I go.

Subscribe

  • Entries (RSS)
  • Comments (RSS)

Archives

  • November 2025
  • July 2025
  • June 2025
  • May 2025
  • April 2025
  • March 2025
  • February 2025
  • January 2025
  • December 2024
  • October 2024
  • September 2024
  • August 2024
  • July 2024
  • June 2024
  • May 2024
  • April 2024
  • February 2024
  • January 2024
  • January 2023
  • May 2021
  • April 2021
  • February 2021
  • February 2020
  • September 2018
  • August 2018
  • March 2018
  • February 2018
  • June 2017
  • March 2017
  • January 2017
  • September 2016
  • August 2016
  • July 2016
  • June 2016
  • March 2016
  • February 2016
  • November 2015
  • October 2015
  • September 2015
  • August 2015
  • July 2015
  • June 2015
  • May 2015
  • March 2015
  • February 2015
  • November 2014
  • October 2014
  • September 2014
  • August 2014
  • June 2014
  • May 2014
  • April 2014
  • March 2014
  • February 2014

Categories

  • Uncategorized

Meta

  • Create account
  • Log in

Blog at WordPress.com.

  • Subscribe Subscribed
    • sherrygomeswrites
    • Join 57 other subscribers
    • Already have a WordPress.com account? Log in now.
    • sherrygomeswrites
    • Subscribe Subscribed
    • Sign up
    • Log in
    • Report this content
    • View site in Reader
    • Manage subscriptions
    • Collapse this bar